Engaging Patients and Families in the Medical Home

June 2010
AHRQ Publication No. 10-0083-EF
Prepared For:
Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services, 540 Gaither Road, Rockville, MD 20850, www.ahrq.gov

Contract Number: HHSA290200900019I TO2
Submitted By: Mathematica Policy Research, 600 Maryland Avenue SW, Suite 550, Washington, DC 20024-2512
Authors: Sarah Hudson Scholle, Phyllis Torda, Deborah Peikes, Esther Han, and Janice Genevro

Table 4. Framework for patient and family engagement in the medical home
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Patients and families engaged in their own care

Communication and Information Sharing

  • Learn about how the practice works
  • Discuss roles with team
  • Get help with organizing and coordinating care

Self-care

  • Work with team to set self-care goals
  • Get help with managing chronic illness
  • Participate in activities to reduce health risks
  • Participate in peer support groups

Decisionmaking

  • Use evidence-based decision aids
  • Discuss risks and benefits of different options
  • Decide jointly with the health care provider on a treatment

Safety

  • Review medical information and treatment results with the clinician or practice team
  • Share information about medications and treatments received in other settings
  • Report on adverse events and potential safety problems

Patients and families engaged in practice improvement

  • Participate in quality improvement activities
  • Participate in patient/family advisory councils or other regular meetings
  • Provide feedback through surveys
  • Help in development of patient materials
  • Participate in focus groups
  • Do “walk-through” to give staff a patient perspective of practice workflow

Patients and families engaged in policy

  • Serve on policy and quality improvement committees for various private and public initiatives
  • Gather input from other consumers
  • Participate in design of medical home or other demonstration projects
  • Participate in training for practice teams