Engaging Patients and Families in the Medical Home

June 2010
AHRQ Publication No. 10-0083-EF
Prepared For:
Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services, 540 Gaither Road, Rockville, MD 20850, www.ahrq.gov

Contract Number: HHSA290200900019I TO2
Submitted By: Mathematica Policy Research, 600 Maryland Avenue SW, Suite 550, Washington, DC 20024-2512
Authors: Sarah Hudson Scholle, Phyllis Torda, Deborah Peikes, Esther Han, and Janice Genevro

Table 4. Framework for patient and family engagement in the medical home

Patients and families engaged in their own care

Communication and Information Sharing

  • Learn about how the practice works
  • Discuss roles with team
  • Get help with organizing and coordinating care


  • Work with team to set self-care goals
  • Get help with managing chronic illness
  • Participate in activities to reduce health risks
  • Participate in peer support groups


  • Use evidence-based decision aids
  • Discuss risks and benefits of different options
  • Decide jointly with the health care provider on a treatment


  • Review medical information and treatment results with the clinician or practice team
  • Share information about medications and treatments received in other settings
  • Report on adverse events and potential safety problems

Patients and families engaged in practice improvement

  • Participate in quality improvement activities
  • Participate in patient/family advisory councils or other regular meetings
  • Provide feedback through surveys
  • Help in development of patient materials
  • Participate in focus groups
  • Do “walk-through” to give staff a patient perspective of practice workflow

Patients and families engaged in policy

  • Serve on policy and quality improvement committees for various private and public initiatives
  • Gather input from other consumers
  • Participate in design of medical home or other demonstration projects
  • Participate in training for practice teams