Engaging Patients and Families in the Medical Home

June 2010
AHRQ Publication No. 10-0083-EF
Prepared For:
Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services, 540 Gaither Road, Rockville, MD 20850, www.ahrq.gov

Contract Number: HHSA290200900019I TO2
Submitted By: Mathematica Policy Research, 600 Maryland Avenue SW, Suite 550, Washington, DC 20024-2512
Authors: Sarah Hudson Scholle, Phyllis Torda, Deborah Peikes, Esther Han, and Janice Genevro

Table 3. Definitions of patient-centered care
Picker Institute (Undated; Gerteis et al., 1993)Commonwealth Fund (Davis et al., 2005)Institute for Family-Centered Care (Undated [a])
Respect for patients’ values, preferences, and expressed needs
  • Information, communication, and education
  • Emotional support and alleviation of fear and anxiety
  • Involvement of family and friends
  • Continuity and transition
  • Physical comfort
  • Coordination and integration of care
  • Access to care
Superb access to care
  • Patient engagement in care
  • Information systems supporting high-quality care, practice-based learning, and quality improvement
  • Care coordination
  • Integrated, comprehensive care, and smooth information transfer across team of providers
  • Ongoing feedback to practice
  • Publicly available information on practices
Dignity and respect. Health care practitioners listen to and honor patient and family perspectives and choices. Patient and family knowledge, values, beliefs, and cultural backgrounds are incorporated into the planning and delivery of care.
  • Information sharing. Health care practitioners communicate and share complete and unbiased information with patients and families in ways that are affirming and useful. Patients and families receive timely, complete, and accurate information in order to participate effectively in care and decisionmaking.
  • Participation. Patients and families are encouraged and supported in participating in care and decisionmaking at the level they choose.
  • Collaboration. Patients, families, health care practitioners, and health care leaders collaborate in policy and program development, implementation, and evaluation; in facility design; and in professional education, as well as in the delivery of care.