Parent-reported outcomes of comprehensive care for children with medical complexity.

Authors, Primary Kuo,Dennis Z.;Robbins,James M.;Lyle,Robert E.;Barrett,Kathleen W.;Burns,Katherine H.;Casey,Patrick H.
Title Primary Parent-reported outcomes of comprehensive care for children with medical complexity.
Periodical Full Families, Systems, & Health
Pub Year 2006
Volume 31
issue 2
Start Page 132-141
Abstract The Medical Home Clinic for Special Needs Children (MHCL) at Arkansas Children's Hospital provides comprehensive care oversight for children with medical complexity (CMC). The objective of this study is to evaluate parent perceptions of health care delivery outcomes after 12 months of enrollment in the MHCL. This is a prospective cohort study of parents of MHCL patients, who completed surveys at initial and 12-month visits. Surveys assessed parent health, child health and function, family stress, and overall satisfaction, using previously validated measures and scales. Paired analyses examined differences in measures between baseline and 12 months. One-hundred and twenty of 174 eligible parents completed the follow-up survey at 12 months. Respondents were 63% White/Caucasian, 90% biological parent, and 48% with an annual family income 1 additional child with special needs reporting a marked decline (49.2 vs. 42.5, p < .001). No other changes in family impact were found. We conclude that comprehensive care oversight may improve care coordination for parents of CMC, but no association with improved parent health was found. Future studies should identify the factors that influence parental burden and tailor clinical interventions to address such factors. (PsycINFO Database Record (c) 2013 APA, all rights reserved) (journal abstract)
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Author/Address Kuo, Dennis Z.:; Kuo, Dennis Z.: Center for Applied Research and Evaluation, Department of Pediatrics, University of Arkansas for Medical Sciences, AR, US Robbins, James M.: Center for Applied Research and Evaluation, Department o(TRUNCATED)
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Reference Type(s) Not Available
Topic Tag(s) Comprehensive Care;Patient-Centered Care
Special Population(s) Children with Special Needs
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