Models of comprehensive multidisciplinary care for individuals in the United States with genetic dis

Authors, Primary Grosse,S. D.;Schechter,M. S.;Kulkarni,R.;Lloyd-Puryear,M. A.;Strickland,B.;Trevathan,E.
Title Primary Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders
Periodical Full Pediatrics
Pub Year 2009
Volume 123
issue 1
Start Page 407-412
Abstract Approaches to providing comprehensive coordinated care for individuals with complex diseases include the medical home approach, the chronic care model in primary care, and disease-specific, multidisciplinary specialty clinics. There is uneven availability and utilization of multidisciplinary specialty clinics for different genetic diseases. For 2 disorders (i.e., hemophilia and cystic fibrosis), effective national networks of specialty clinics exist and reach large proportions of the target populations. For other disorders, notably, sickle cell disease, fewer such centers are available, centers are less likely to be networked, and centers are used less widely. Models of comanagement are essential for promoting ongoing communication and coordination between primary care and subspecialty services, particularly during the transition from pediatric care to adult care. Evaluation of the effectiveness of different models in improving outcomes for individuals with genetic diseases is essential. [References: 49]
Publisher Not Available
Place of Publication United States
Author/Address National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA.
PubMed Link
Reference Type(s) Journal Article
Topic Tag(s) Comprehensive Care;Care Coordination
Special Population(s) Individuals with Multiple Chronic Conditions
Case Study No
Commentary/Opinion Piece No
Historical Publication No
Key/Foundational Article No
Literature Review No
Article Rating No
Summary of Article Rating No