Barriers to Care for Children and Youth With Special Health Care Needs: Perceptions of Illinois Pedi

Authors, Primary Agrawal,Rishi;Shah,Parag;Zebracki,Kathy;Sanabria,Kathy;Kohrman,Claire;Kohrman,Arthur F.
Title Primary Barriers to Care for Children and Youth With Special Health Care Needs: Perceptions of Illinois Pediatricians
Periodical Full Clinical pediatrics
Pub Year 2012
Volume 51
issue 1
Start Page 39-45
Abstract OBJECTIVE. To assess primary care pediatricians' (PCPs') perceptions of caring for children and youth with special health care needs (CYSHCN). METHODS. Cross-sectional survey of Illinois pediatricians. RESULTS. Thirty-five percent of surveys were returned and 26% were analyzed. The top 3 perceived barriers were insufficient time (72%), insufficient reimbursement (68%), and lack of support services (59%). Insufficient interest was the least cited barrier (19%). Preparedness to perform tasks related to care of CYSHCN ranged from 89% for accessing early intervention services to 24% for billing and coding. The percentage of PCPs somewhat or very comfortable providing primary care to patients with technology dependence ranged from 75% for blood glucose monitoring to 12% for dialysis. CONCLUSIONS. The issues of time, reimbursement, billing, and coding are perceived as significant barriers to the care CYSHCN. There is substantial variation in PCPs' comfort in the care of CYSHCN who require the assistance of medical technologies.
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Reference Type(s) Journal Article
Topic Tag(s) Access to Care;Primary Care Workforce Issues;Outcomes
Special Population(s) Children with Special Needs
Case Study No
Commentary/Opinion Piece No
Historical Publication No
Key/Foundational Article No
Literature Review No
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